August 2, 2013

[Zihni 18 bulan] Ramadan yang hilang...

 


My FB status on 25 Julai 2013
Assalamualaikum. Berikut ialah jawapan bg sesiapa yg bertanyakan kenapa dan bagaimana ‪#‎ZihniAflahIzhar‬ sakit. Sesungguhnya, hidup, sihat, sakit & mati adalah dalam kuasa Allah swt.

~~~

Februari 2013: Zihni was admitted due to diarrhea & pneumonia. Her liver was spotted to be enlarged by 2 cm; usually due to infection.

April 2013: Went to follow up at paeds clinic & the size of liver didnt reduce at all. Blood test was done & she's suspected yo have Thalasaemia (momy & ayah have NO TRAIT at all).

June 2013: Having another pneumonia attacks & went to personal paeds. Her liver was spotted to be enlarged by +1 cm and the spleen was also enlarging.

10 July 2013: Went to next follow up at paeds clinic, the liver was confirmed to be enlarged to 3 cm & spleen 1 cm. Was suspected to have Thalasaemia (ayah & momy were like HAHHHH??? WE HAVE NO TRAIT!). Another blood test was done but have to wait for another appointment in Oct 2013.

13 July2013: Momy & ayah cant wait (tak penyabar!) and send Zihni to have another blood test.

17 July 2013: Result came out. Again the tak penyabar parents went to the personal paeds and was confirmed that she's having a problem with the liver (as her tak penyabar momy's instinct). A letter to paeds gastroenteologist was written by the paeds.

18 July 2013: Momy bring her to have an ultrasound at panel hospital (which at d end of the day decline the coverage). The paeds there confirmed that her liver & spleen are enlarging but there's no sign of tumor & cancer. Alhamdulillah. Sadly he said that if it is hepatitis then they usually wont do anything bcz hepatitis have no cure. Ok, momy went home very upset & refuse to talk to ayah (kemurungan??? hahaha)

19 July 2013:
*after sahur* Ayah PM-ed Selayang Hospital thru FB asking to know the procedure of requesting to meet the paeds gastroenterologist (Selayang Hosp the good one in Malaysia). We received their quick reply at 730 a.m. same day. At 830 a.m. the PR officer called & promised to help. By 11 a.m. She called again & said the doc (as we named in the msg) agreed to meet us asap.

22 July 2014: Zihni was admitted. Momy went thru a 4-hour interview session on pre & post-natal history. Another blood test was done + some physical tests. Later we were told dat our beloved beautiful sweetie pie is suspected to suffer from a liver failure & metabolic disorders but still, it is NOT CONFIRM!

23 & 24 July 2013: More tests & examinations were done and we're still waiting for some of the results with the highest hope of miracle to happen.

~~~

Adalah diharapkan karangan ini dapat menjawab persoalan kawan2 yg prihatin & mengambil berat. Namun begitu, adalah sangat diharapkan tiada sebarang pertanyaan susulan diajukan kerana kami memerlukan tempoh bertenang & merehatkan minda (we r extremely exhausted mind, body & soul).

Zihni akan ditahan di Wad 8B Hospital Selayang sehingga Ahad (OMG it's a long weekend & we r spending it in hospital!!!) & Zihni akan dihantar ke HKL pada hari Isnin 29/7 untuk siasatan lanjut (dah mcm penjenyah pulak hehehee...) selain utk memberi peluang momy meraih pengalaman menaiki ambulan (feeling excited ‪#‎tetibe‬). But dont worry, Zihni masih aktif & bertenaga terjerit2 terkinja2 di sini.

Doktor yg merawat Zihni juga telah mewarning momy & ayah supaya menyekat tahap sosial Zihni (hahaha) utk mengelakkan kuman & bakterial lain mengelilingi Zihni... So early reminder to pakcik makcik Basripuzi Hayyan Mu'in Hassan Sitisarah Isa Dahlia Khalid Fauza Khalid nanti kalo nk dukung Zihni sila basuh tgn anda dgn sabun dan NO NO NO CIUM CIUM COMOLOT PLS... Huhu tengok ajolah yo!

Sekian. Tq.



My FB status on 26 Julai 2013
We should say sorry to d doctor yg suspect Zihni got Thalasaemia tu. Dia upset sebab rasa kami upset dgnnya. Yes, at first! Tapi lps tahu kes Zihni ni mmg xdpt dikesan awal2, I know we should thank her for spotting the liver enlargement and keep suspecting her to get cancer. Otherwise, mungkin sampai tah hape2 jadi baru kami nak rush here n there mcm sekarang utk treat Zihni. At least, kami beruntung sbb most of the patients who suffer mucopolysaccharidosis dpt di-trace bila dah a bit too late. Dah masuk sekolah n all that. So Dr. Joling, we'll see u one day for a token of sorry & thanks. No worry it's nobody fault. We call "this a gift from Allah" At least 2-3 future doctors dpt jugak study kes Zihni utk tgk early sign of this illness, insyaAllah... Alhamdulillah...



My FB status on 29 Julai 2013
Assalamualaikum semua.
Quick update on Zihni Aflah.
We are now in IPHKL just meeting a group of genetic specialists. Good thing is... It MIGHT NOT BE mucopolysacchaaridosis but... It is still liver disfunction AND another UNKNOWN things regarding her organs. Need further investigations. Tu je yg the doctors (3 of them altogether) in quite a curious look dapat bgtau kami, so tu je yg dpt kami bgtahu buat masa ini. Selebihnya, kami pun masih tertanya2...

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